If you know me very well, you probably know that I have a fifteen year old son who has Autism. If you have been to our church or been around me, there is a good chance you would have seen him or heard me talking about him. He is pretty hard to miss: very loud and moves around a lot. He can be difficult to understand because he has unusual speech patterns and usually speaks to himself in the third person - often during quiet or inappropriate times. He repeats phrases again and again while rapidly tracing letters with his index finger in the air as though he is writing out his thoughts on an invisible chalkboard. His laughter is high-pitched, loud and contagious. He sings a lot - his choir teacher once told us she thought he had perfect pitch. He knows the titles and writers of countless songs and movies. He remembers people's names with frightening accuracy and he has a great understanding of direction. He used to tell us what exits to take on the toll road when he was six when we took long drives. Alex has an effective IQ of about 88. He can read and write at a 2nd or 3rd grade level. He is driven by time and gets frustrated if something doesn't happen when it's supposed to. He has difficulty remaining focused enough to accomplish even the most basic of tasks like getting dressed. He almost always puts his shirt on backwards. Personal hygiene is a challenge. He can go into a panic if he feels like he is alone so we make sure that an adult is with him 24/7.
I have never written about Alex before but I think you should know who he is. My wife, Chris and I have shaped our lives around Alex and the disease that affects him and thousands of other children around the world. He has become as much of who we are as we are. Over the course of my life with him, I have felt that God has spoken to me through him; sometimes through the miraculous and sometimes through painful experiences. I will probably be writing about some of those but I thought it important I introduce him to you, first.
Tuesday, November 20, 2007
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10 comments:
Thank you for being so "wide open". I've always appreciated your transparency. You've hit on my very favorite attribute of God...He is a "teacher". He uses any and every circumstance, trial, person, event and moment in our lives and leverages it for our growth and to show us what He desires out of our lives. I'm looking forward to hearing more of how God has used Alex in your life...and vice-versa
Thanks Butch!
Everyone of us has an "alex" in our life...someone or something that God uses to help us grow, learn how to love deeper, or just become more like Him. Alex is very blessed to have great parents like you & Chris!!
Thanks so much for sharing about Alex. I have loved getting to know him. He is a blessing to many.:)
I love the chances I get to talk with Alex. He makes me smile. Students with Autism are my favorite. I know you aren't suppose to have favorites but I do. My special friend I hang out with on Sunday mornings is autistic and like Alex knows music. We play drums and sing every week. Last week he came in singing ALL of Beethoven's Fifth Symphony. He thought it was Mozart but he is only 5. We have time to work on that.
By the way, I love that you bring Alex to hang out at Lifeline. I'm glad he is there.
One of my first favorite memories of being on staff was sitting at the drama team pool party and wacthing Alex walk around the pool and sing worship songs. I remember being so nervous in my role at first. anxious that I would do or say something embarassing. Watching Alex, I was incredibly inpsired by his joy and lack of inhibition and wondered how my life would change if I was able to stop worrying about what people think and just live with natural joy. That was my first Alex lesson. I look forward to more in the future . . .
Butch, I so love Alex and miss him a ton. His life speaks and teaches! I see Jesus in his eyes.
In case you didn't know...I love your son.
you're ok.
Alex is my favorite :o)
As a pastor who also has an autistic son, I've often thought blogging about the daily things that we go through with our son. I know that there are many parents who face the challenges that autism presents, and the more those challenges get out there the better. Thanks for your transparency. You've inspired me to try some of that on my own.
Butch,
I'm a music pastor in Orlando, FL. In the summer of 2006, My wife and I were blessed with an awesome son (his name is Kyle). He has physical and mental challenges and, at his young age, we're still not sure exactly what he will have to face in his life. God has used him in ways that he might never know, in our lives and in our church. It sounds cliche, but he really is a blessing.
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